Spring time???

Spring has sprung in Colorado Springs....or has it?!?! In just one day we went from warm enough for the kids to be out playing football in front of the church to raining, to snowing. Oh how I love Colorado weather (insert sarcastic voice). As my husband put it "This weather is perfect, it makes everyone happy all in one day." I wish I could agree. Happy for me is much warmer and staying much warmer. Oh well we will get there.

So our first football game of the spring season has come and gone. The boys lost but I know that Robert played his heart out and was pretty impressive out there. He was glad to be back out on the field and said it felt really good to get out there and start hitting again. Practice this week is probably going to be pretty intense since there is plenty of room for improvement at this point. So proud of Robert though for getting back out there and putting his all in it.

We did get an unexpected phone call this week from the GI Dr. After going over the photos in more detail they did find some ulcers in Payton's lower esophagus. This shows that she does have some acid reflux that could be a problem for her. We started her on a Zantac suspension and hopefully this should help with that. We are now waiting for the call back to schedule a CAT scan since they weren't able to determine if the ring is vascular or not. Whew! This has definitely turned into a lot more than just an endoscopy!

Also we are still working on fund raising for the Aicardi Conference in July. I know it is a couple of months away but for our family we have to start thinking ahead now. Please if you can help out no matter how big or small, even if you just share it with your friends it would mean so much to us.

I am so bad....

Ok so I am a bad blogger! I let my life get a little to full and haven't updated here. So here goes...this could take a while. Lets start with Payton. Payton saw the GI Dr. and we were ordered to keep going with the pediasure since she did gain some weight by supplementing that in her diet several times a day. They also ordered an endoscopy and a swallow study just to make sure there are no mechanical issues that are causing her feeding issues. We had the endoscopy done on the 28th of March. There were mixed results. They did not find the ulcers that they had thought they would find since the Dr had thought Payton had reflux. SO that is a good thing. They did however find some thing else that is concerning. Payton has a constriction in her esophagus which could be one of the issues with feeding. They did a biopsy so that they can figure out what it is. The concern is that it is vascular, since it was pulsing, in which case there would be nothing we could do to fix it. If it is not vascular we can either have it surgically removed or have a procedure done where they would stretch it. Still waiting on the biopsy results at this time.  Gross out warning! The top picture is what Payton's throat looks like and the bottom picture is what it should look like. 

 

In even more news on Payton, her NovaChat finally arrived! We have been waiting for over a year for this and it is finally here! Her speech therapist came today to get it all set up and to get Payton started using it. I can't wait for Payton to be able to better communicate her needs and wants to us.  

Robert is back to playing football, I have to admit it makes me a little bit nervous with his jaw, but I know that I cannot show that to him. He had a few moments where he was definitely scared and a little timid but with a few weeks of practice I can definitely see him coming back full force to being the awesome player that he has always been! Our first game is Saturday, 8:30am at Memorial Park, which means 7:30 arrival time but we will be there bright and early!! GO RAVENS!!!!  

Andie had her amazing 10th birthday party the past weekend. An all out boys vs girls Nerf gun war and a girly sleepover after. It was fun but someone please remind me next year when she asks for a sleepover what it was like this year! I can't believe how much drama 10 year old girls can bring. Poor Ian was stuck there all alone as the only boy. Robert was hiking in Utah with his best buddy Max for half of spring break and missed out on the party. Andie also had her IEP last month and for the first time EVER my baby girl is reading at grade level! I am so proud of her! She is learning that dyslexia does not have to be a stumbling block but a stepping stone. GO ANDIE!!

Miss Katie is going out for Softball again this year and she is super excited about it. We also found a diving club here in Colorado Springs that we are going to try and get her in within the next few months. She loves diving and is so good at it I don't want her to lose that. She is also doing really great in school and I am so proud of her because I know that 7th grade was a bit of a struggle for her at the beginning of the year but she has really worked hard to get back on top of it! She has her large group competition for choir coming up, she is learning to sight read and will be tested on that as part of the competition and I know she will do great. Have a I mentioned that she sings like an angel....because she sings like an angel!!

Ryan is still doing amazing in school. He made the Dean's list and is loving his classes. He has made some great friends there and several of them have started a men's Bible study on Friday nights. I love to see him meeting new people and coming together to worship and grow their faith together. 

I will make a much more concerted effort to not let myself get to distracted to remember to make updates here!