So after Payton had her upper GI done I had told you all that the Dr had said that he didn't see the growth in Paytons throat and that it wasn't vascular. Sadly we received a phone call yesterday evening from the GI saying that they made a mistake and that they believe it to be a vascular anomaly. This means that the steps we had planned on going forward to dialate her throat are right now a no go. She is schedule to have a CT scan done in the next few weeks and we will see what that looks like. This should give the Dr's a better idea of what it is connecting to. If that test comes back that it is vascular than we cannot dialate or remove it since that is just to dangerous. That would mean some more testing to see if this is something that is growing and changing. If it is obviously we would have to start looking at some other options for her as far as feeding goes. We were told when Payton was very small that children born with her type of heart condition often have other issues with arteries and vessels but you just have to wait to find them most of the time. Looks like we have made our first discovery.
I have to admit I was pretty upset yesterday evening. I know that Dr's are only human and just as capable of making mistakes as I am. I am just struggling right now with the roller coaster ride of ups and downs we have had in the last few weeks. I know that He has this all in His capable hands. I have prayed for God to take this away from her, but also that not my will but His will be done through all of this. I ask that you please continue to pray for all of us and for the Dr's as we go forward from here.
No comments:
Post a Comment